Other Public Affairs Sites of Interest

FASEB Office of Public Affairs

Office of Human Research Protections (OHRP)

Presidential Commission for the Study of Bioethical Issues (formerly NBAC)

Association for the Accreditation of Human Research Protection Programs (AAHHRP)

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More Information

Governance

To contribute your point of view on any issue, please contact the ASIP Public Affairs Working Group through Jennifer Dreyfus at jdreyfus@asip.org. Thank you!

 

ASIP Public Affairs

 

Effective January 1, 2010, ASIP formed the Public Affairs Working Group, which is currently Chaired by Daniel Remick of Boston University. Other members include: Stephen Galli, Avrum Gotlieb, Linda McManus, Carlos Moreno, James Musser, and Cecelia Yates. Areas of active interest to the ASIP Public Affairs Working Group are listed below with links to current information:

• Human Subjects Research Protections

ASIP has a long history of active leadership on relevant Boards concerning human subjects research protections. In response to the ANPRM issued by the U.S. Department of Health and Human Services on July 26, 2011, ASIP submitted a response focused on biospecimen issues. Full response

• NIH Appropriations

ASIP tracks and supports NIH appropriations through FASEB's Office of Public Affairs. To sign up for action alerts or to receive the Washington Update (a bi-weekly publication that provides updates on all legislative matters), CLICK HERE.

• Translational Research

ASIP published news and positions on translational research in these issues of ASIP Pathways:
- June 2011
- February 2011

Other areas of active interest to the ASIP Public Affairs Working Group include gene patent law, health information technology as it applies to the research enterprise, creating a physician-scientist track for Pathology Board certification, reduction in NIH's graduate education funding, Open Access and open government initiatives, HIPPA policy impact on research, and issues related to biorepository and biosecurity regulation.

To contribute your point of view on any issue, please contact the ASIP Public Affairs Working Group through Jennifer Dreyfus at jdreyfus@asip.org. Thank you!

 

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Archive of Past Documents/Issues (in chronological order):

2004 ASIP Office Reply to NIH Regarding "Open Access

2002 Senator Feinstein Letter/"Human Cloning Prohibition Act," S.1758

2001 ASIP Position on Electronic Publishing

1999 Confidentiality, Data Security, and Cancer Research: Report of a Workshop

1999 ASIP Response to CSR

1999 ASIP Response to NIH E-Biomed Proposal

1999 ASIP Response to NBAC Draft Report

1999 ASIP Encourages Response to CSR

1999 ASIP Achievements

1998 AAMC Report on use of Patient Information in Research

1998 Patricia Backlar: Access to Archived Human Tissue (EB98)

1998 ASIP Concern regarding Domenici Proposal

1998 David Korn: Genetic Privacy and Patient Tissues in Research (EB98)

1997 ASIP Newletter: Human Tissues in Research; Richard Lynch

1997 ASIP Position: Human Tissues in Genetic Research

1997 Cloning Human Beings; NBAC Report; Richard Lynch

1996 Combined Pathology Statement

1995 ASIP Newletter; Mark Sobel